Living with Autism Spectrum Disorder

 

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Dedication

This book is dedicated to Dave Ray for without him I would not be where I am today.

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Introduction 

Defining Autism

Autism spectrum disorder (ASD) and autism are both general terms for a group of complex disorders of brain development. These disorders are characterized, in varying degrees, by difficulties in social interaction, verbal and nonverbal communication and repetitive behaviours.

Autism appears to have its roots in very early brain development. However, the most obvious signs of autism and symptoms of autism tend to emerge between 2 and 3 years of age.  Both children and adults with autism typically show difficulties in verbal and non-verbal communication, social interactions, and leisure or play activities.

Autism Spectrum Disorder has specific diagnostic criteria outlined in the American Psychiatric Association's Diagnostic & Statistical Manual of Mental Disorders (DSM-IV-TR).

Who is Affected?

ASD occurs in all racial, ethnic, and socioeconomic groups, but are almost five times more common among boys than among girls. CDC estimates that about 1 in 68 children (2014 CDC) has been identified with an autism spectrum disorder (ASD).

Types of ASD

There are three different types of Autism Spectrum Disorders:

  • Autistic Disorder ASD LEVEL 3 (ALSO CALLED "CLASSIC" AUTISM)
    This is what most people think of when hearing the word "autism."  People with autistic disorder usually have significant language delays, social and communication challenges, and unusual behaviors and interests. Many people with autistic disorder also have intellectual disability.
  • Asperger Syndrome ASD LEVEL 1
    People with Asperger syndrome usually have some milder symptoms of autistic disorder.  They might have social challenges and unusual behaviors and interests.  However, they typically do not have problems with language or intellectual disability.
  • Pervasive Developmental Disorder – NOT OTHERWISE SPECIFIED (PDD-NOS; ALSO CALLED "ATYPICAL AUTISM") ASD LEVEL 2
    People who meet some of the criteria for autistic disorder or Asperger syndrome, but not all, may be diagnosed with PDD-NOS. People with PDD-NOS usually have fewer and milder symptoms than those with autistic disorder.  The symptoms might cause only social and communication challenges.

Signs and Symptoms

ASDs begin before the age of 3 and last throughout a person's life, although symptoms may improve over time. Some children with an ASD show hints of future problems within the first few months of life. In others, symptoms might not show up until 24 months or later. Some children with an ASD seem to develop normally until around 18 to 24 months of age and then they stop gaining new skills, or they lose the skills they once had.
A person with an ASD might:

  • Not respond to their name by 12 months
  • Not point at objects to show interest (point at an airplane flying over) by 14 months
  • Not play "pretend" games (pretend to "feed" a doll) by 18 months
  • Avoid eye contact and want to be alone
  • Have trouble understanding other people's feelings or talking about their own feelings
  • Have delayed speech and language skills
  • Repeat words or phrases over and over (echolalia)
  • Give unrelated answers to questions
  • Get upset by minor changes
  • Have obsessive interests
  • Flap their hands, rock their body, or spin in circles
  • Have unusual reactions to the way things sound, smell, taste, look, or feel

Prevalence of Autism

Autism statistics from the U.S. Centers for Disease Control and Prevention (CDC, April 2012) identify around 1in 68 American children as on the autism spectrum. Careful research shows that this increase is only partly explained by improved diagnosis and awareness. Studies also show that autism is five times more common among boys than girls. An estimated 1 out of 48 boys and 1 in 252 girls are diagnosed with autism in Canada.

Causes and Risk Factors

Scientist do not know all of the causes of ASDs.  However, they have learned that there are likely many causes for multiple types of ASD.  There may be many different factors that make a child more likely to have ASD, including environmental, biologic and genetic factors.

  • Most scientists agree that genes are one of the risk factors that can make a person more likely to develop an ASD.
  • Children who have a sibling or parent with an ASD are at a higher risk of also having an ASD.
  • ASDs tend to occur more often in people who have certain other medical conditions. About 10% of children with an ASD have an identifiable genetic disorder, such as Fragile X syndrome, tuberous sclerosis, Down syndrome and other chromosomal disorders.
  • Some harmful drugs taken during pregnancy have been linked with a higher risk of ASDs, for example, the prescription drugs thalidomide and valproic acid.
  • We know that the once common belief that poor parenting practices cause ASDs is not true.
  • There is some evidence that the critical period for developing ASDs occurs before birth.

Social communication and interaction

A child or adult with autism spectrum disorder may have problems with social interaction and communication skills, including any of these signs:

  • Fails to respond to his or her name or appears not to hear you at times
  • Resists cuddling and holding, and seems to prefer playing alone, retreating into his or her own world
  • Has poor eye contact and lacks facial expression
  • Doesn't speak or has delayed speech, or loses previous ability to say words or sentences
  • Can't start a conversation or keep one going, or only starts one to make requests or label items
  • Speaks with an abnormal tone or rhythm and may use a singsong voice or robot-like speech
  • Repeats words or phrases verbatim, but doesn't understand how to use them
  • Doesn't appear to understand simple questions or directions
  • Doesn't express emotions or feelings and appears unaware of others' feelings
  • Doesn't point at or bring objects to share interest
  • Inappropriately approaches a social interaction by being passive, aggressive or disruptive
  • Has difficulty recognizing nonverbal cues, such as interpreting other people's facial expressions, body postures or tone of voice

Patterns of behaviour

A child or adult with autism spectrum disorder may have limited, repetitive patterns of behaviour, interests or activities, including any of these signs:

  • Performs repetitive movements, such as rocking, spinning or hand flapping
  • Performs activities that could cause self-harm, such as biting or head-banging
  • Develops specific routines or rituals and becomes disturbed at the slightest change
  • Has problems with coordination or has odd movement patterns, such as clumsiness or walking on toes, and has odd, stiff or exaggerated body language
  • Is fascinated by details of an object, such as the spinning wheels of a toy car, but doesn't understand the overall purpose or function of the object
  • Is unusually sensitive to light, sound or touch, yet may be indifferent to pain or temperature
  • Doesn't engage in imitative or make-believe play
  • Fixates on an object or activity with abnormal intensity or focus
  • Has specific food preferences, such as eating only a few foods, or refusing foods with a certain texture

As they mature, some children with autism spectrum disorder become more engaged with others and show fewer disturbances in behaviour. Some, usually those with the least severe problems, eventually may lead normal or near-normal lives. Others, however, continue to have difficulty with language or social skills, and the teen years can bring worse behavioural and emotional problems.

When to see a doctor

Babies develop at their own pace, and many don't follow exact timelines found in some parenting books. But children with autism spectrum disorder usually show some signs of delayed development before age 2 years.

If you're concerned about your child's development or you suspect that your child may have autism spectrum disorder, discuss your concerns with your doctor. The symptoms associated with the disorder can also be linked with other developmental disorders.

Signs of autism spectrum disorder often appear early in development when there are obvious delays in language skills and social interactions. Your doctor may recommend developmental tests to identify if your child has delays in cognitive, language and social skills, if your child:

  • Doesn't respond with a smile or happy expression by 6 months
  • Doesn't mimic sounds or facial expressions by 9 months
  • Doesn't babble or coo by 12 months
  • Doesn't gesture — such as point or wave — by 14 months
  • Doesn't say single words by 16 months
  • Doesn't play "make-believe" or pretend by 18 months
  • Doesn't say two-word phrases by 24 months
  • Loses language skills or social skills at any age

No link between vaccines and autism spectrum disorder

One of the greatest controversies in autism spectrum disorder canters on whether a link exists between the disorder and childhood vaccines. Despite extensive research, no reliable study has shown a link between autism spectrum disorder and any vaccines. In fact, the original study that ignited the debate years ago has been retracted due to poor design and questionable research methods.

Avoiding childhood vaccinations can place your child and others in danger of catching and spreading serious diseases, including whooping cough (pertussis), measles or mumps.

Risk factors

The number of children diagnosed with autism spectrum disorder is rising. It's not clear whether this is due to better detection and reporting or a real increase in the number of cases, or both.

Autism spectrum disorder affects children of all races and nationalities, but certain factors increase a child's risk. These may include:

  • Your child's sex. Boys are about four times more likely to develop autism spectrum disorder than girls are.
  • Family history. Families who have one child with autism spectrum disorder have an increased risk of having another child with the disorder. It's also not uncommon for parents or relatives of a child with autism spectrum disorder to have minor problems with social or communication skills themselves or to engage in certain behaviors typical of the disorder.
  • Other disorders. Children with certain medical conditions have a higher than normal risk of autism spectrum disorder or autism-like symptoms. Examples include fragile X syndrome, an inherited disorder that causes intellectual problems; tuberous sclerosis, a condition in which benign tumors develop in the brain; and Rett syndrome, a genetic condition occurring almost exclusively in girls, which causes slowing of head growth, intellectual disability and loss of purposeful hand use.
  • Extremely preterm babies. Babies born before 26 weeks of gestation may have a greater risk of autism spectrum disorder.
  • Parents' ages. There may be a connection between children born to older parents and autism spectrum disorder, but more research is necessary to establish this link.

Complications

Problems with social interactions, communication and behaviour can lead to:

  • Problems in school and with successful learning
  • Employment problems
  • Inability to live independently
  • Social isolation
  • Stress within the family
  • Victimization and being bullied

Prevention

There's no way to prevent autism spectrum disorder, but there are treatment options. Early diagnosis and intervention is most helpful and can improve behaviour, skills and language development. However, intervention is helpful at any age. Though children usually don't outgrow autism spectrum disorder symptoms, they may learn to function well.

The main signs of autism are differences in how autistic people communicate and interact with others.

Autism is a spectrum condition, which means that it affects people in different ways. 

But most autistic people see, hear and experience the world differently from other people.

Although the signs of autism vary widely among children, young people and adults, there are 2 common characteristics:

  • difficulties with social communication and interaction – autistic people may find it hard to join in conversations or to make friends
  • repetitive behavior, routines and activities – such as fixed daily routines, repetitive body movements and a hypersensitivity to certain sounds

Autistic people may also be under- or oversensitive to certain sounds, lights, colours and other things, known as sensory sensitivity.

These signs are present over time and have a noticeable effect on daily life.

See a GP or health visitor if you notice any of the signs of autism in your child or you're concerned about your child's development.

You can also talk to your child's teacher or care worker.

If you're an adult and are concerned about signs of autism in yourself, talk to a GP.

Possible signs of autism in pre-school children

The signs given here do not necessarily mean your child is autistic. And autistic children may not show all the signs.

Spoken language

  • delayed speech development (for example, speaking less than 50 different words by the age of 2) or not speaking at all
  • repeating set words and phrases
  • speech that sounds monotonous or flat
  • communicating using single words, despite being able to speak in sentences

Responding to others

  • not responding to their name being called, despite having a hearing test showing normal hearing
  • rejecting cuddles initiated by a parent or carer (although they may initiate cuddles themselves)
  • reacting unusually negatively when asked to do something by someone else

Interacting with others

  • not being aware of other people's personal space, or being unusually upset by people entering their own personal space
  • limited interest in interacting with other people, including children of a similar age
  • not enjoying situations other children of their age enjoy
  • preferring to play alone, rather than asking others to play with them
  • difficulties using and understanding gestures, body language and facial expressions when communicating
  • avoiding eye contact

Repetitive or unusual behaviour

  • having repetitive movements, such as flapping their hands, rocking back and forth, or flicking their fingers
  • playing with toys in a repetitive or unexpected way, such as lining blocks up in order of size or color, rather than showing imaginative play
  • preferring to have a familiar routine and getting very upset if there are changes to this routine
  • having a strong like or dislike of certain foods based on the texture or color of the food as much as the taste
  • over- or under sensitivity to sensory stimuli, such as sounds, smells, colors and lights

Possible signs of autism in school-age children

The signs given here do not necessarily mean your child is autistic. And autistic children may not show all the signs.

Spoken language

  • avoiding using spoken language
  • speech that can sound monotonous or flat
  • speaking in pre-learned phrases, rather than putting together individual words to form new sentences
  • a tendency to dominate conversations with others, focusing on topics that are of particular interest to the child

Responding to others

  • taking people's speech literally and finding it difficult to understand sarcasm, metaphors or figures of speech
  • reacting very negatively when asked to do something by someone else

Interacting with others

  • being less aware of other people's personal space, or being very upset by people entering their own personal space
  • appearing to have little interest in interacting with other people, including children of a similar age, or having few close friends, despite attempts to form friendships
  • not understanding how people usually interact socially, such as greeting people or saying goodbye
  • finding it hard to adapt the tone and content of their speech to different social situations – for example, speaking very formally at a party then speaking to total strangers in a familiar way
  • not enjoying situations and activities that a lot of children of their age enjoy
  • rarely using gestures, body language or facial expressions when communicating
  • avoiding eye contact

Unusual or repetitive behaviour

  • repetitive movements, such as flapping their hands, rocking back and forth, or flicking their fingers
  • playing in a repetitive or seemingly unimaginative way
  • often preferring to play with objects rather than people
  • developing a highly specific interest in particular subjects or activities
  • preferring to have a familiar routine and getting very upset if there are changes to their normal routine
  • having a strong like or dislike of certain foods based on the texture or color of the food as much as the taste

Possible signs of autism in adults

The signs given here do not necessarily mean an adult is autistic. And autistic adults may not show all the signs.

Interacting with others

  • not always understanding social "rules"
  • understanding "personal space" differently
  • feeling anxious or stressed in social situations
  • finding it hard to judge "appropriate" interactions, such as being either too formal or too familiar
  • finding it difficult to make friends and keep them
  • lack of eye contact or too much

Communication

  • speech may have a different stress or pitch
  • use of repetition
  • asking questions that other people might find inappropriate

Unusual or repetitive behaviour

  • preferring or being reliant on routine
  • feeling anxious or stressed at changes that may seem minor to other people
  • having particular or very focused interests
  • finding rituals helpful
  • finding it hard to understand abstract concepts, such as time and choice

Autistic adults are more likely to have had problems staying in education or finding and staying in work.

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Eleanor

Why don't you put this appendix at the end. I click in and interested in your book because I used to work with people with Autism for a long time and it still makes me cry when I think about them. I want to know your stories straight.

A Little Bit About Me

Hi, my name is Jeremy Tolmie I am 38 years old and have Autism spectrum disorder Level 1.

I am a certified computer technician having graduated from Academy of Learning with my Computer Service Technician Diploma with honors. 

I used to work for Literacy Central Vancouver Island as a computer technician. I refurbished donated computers that go to families with kids on welfare. 

I used to live with my parents in a 500 SQF bachelor pad. They converted the carport into a living space for me. It has a walk-in closet and a full bathroom. I just share the laundry room. kitchen, and dining room.

As a result of my DX of ASD 1 I was able to get on Disability assistance at 19, got the disability bus pass, the disability ferry pass, the disability entertainment pass, the disability tax credit, and in 2010 I got the Disability savings plan.  Way back then the disability assistance was only $745 a month.  Now it is $1183 a month.  Back then you could only make $100 a month before they cut back your disability assistance check.  Now you can make $12000 a year before they cut back your check.

With the disability tax credit, I don’t have to pay taxes till I make over $20000 a year in taxable income.  

With the disability savings plan the government puts in $1000 a year for 20 years of bonds which comes to $20000 that I do not have to pay back.  Plus, they put in 3 times the amount of money that I put in up to $70000 total in grants that I do not have to pay back.  So that means that I get $90000 towards my retirement.  I have to wait till I am 58 years old before I can start to take money out of the plan.  Plus, you have to wait 10 years from the time you get the bonds and grants before you can take money out and not pay them back.  I have another 20 and a half years to go before I can start taking money out of the plan. I live in BC Canada that is why I get such good options.

I now live with a support worker who takes care of me and cooks my suppers.  He also is an advocate for me helping when I need it.  Like taking me to dr appointments and things like that. The government pays him $716 a month room and board.  I get $467 from the government after paying the support worker.  So, my total disability assistance check is $1183 a month.  

I am working at the library part time putting books away. I work 4 hours a day 4 days a week at the library. I make minimum wage which is at $13.85 an hour which gives me $437 every 2 weeks doing that job.  I get paid 4 hours for stat holidays so that is just a bonus. They take deductions for Canada pension plan, employment insurance, and workers compensation. That is why my check is only $437 instead of $443. I have been doing it for over 4 years now.  

At the end of the year I put whatever is left into a tax-free savings account which is invested in mutual funds.  My disability savings plan is also invested in mutual funds, so I earn lots of interest and reinvestment into the funds.

I love computers, hockey, star trek, video games, alternative music, crime tv shows, most movies except romantic comedies, lord of the rings, harry potter, most fantasy and sifi books movies and games, Netflix, apple products, reading, writing and blogging, Facebook, cartoons, comics, and so much more.

I am always up to making new friends on FB and getting new followers for my blogs. I am also always up to talking to people about what it has been like for me. Or about anything that they want to talk about. I am way more social on FB then I am in person that is why I love FB and am glad that it is around so that I can feel good about being social and giving me the time, I need to make conversations.

I am 18 months older than my brother but have not spoken to him in 18 years. I was adopted at 18 months and did not find out about him till 18 years ago. we met once and he is so much like me it is amazing. he does not look like me, but his mannerisms are so similar you would atomically know that we were brothers.

He got to grow up with my birth mother till she died when he was 14. I never got to meet her so all I have is what my 

brother said about her and what my blood grandmother said and what was in her medical file. she died from a brain tumour so that is how I found out about them at all. My biological grandmother got in touch with my parents to get me tested when I was 16.  the docs first DX was OCD at 16 a year later they said ASD 2 PDD-NOS then 6 months later said ASD 1 Asperger’s syndrome.

It is just so frustrating to feel like you should be able to do all the normal stuff that everybody else does and that it should not be this hard or difficult. That there is no rhyme or reason for how much anxiety you feel all the time. That it should not be this hard to talk to people and keep friends. It really is hard to deal with sometimes. I just wish the good days would out way the bad days once in a while.

I hate when people ask how I feel. I have no freaking idea how I feel so stop asking me this please and thank you. I could not tell you or anyone how I am felling at any given time. I might be able to tell you if it is a really strong emotion that I am feeling but otherwise I have no clue.

I love music and have loved music since the first time I heard it. I love singing to music, dancing to it, listening to it. anything with music is a passion of mine. 

I calm down drastically when listening to music so whenever I get upset or am starting to have a meltdown, I grab my iPod and plug in the ear phones and play some music and it calms me right down in no time.

I did not start to read for fun till I was 18 and my parents bought me the first harry potter book. Till then I thought reading was just a waste of time and would have nothing to do with it.

Since then I have become a big-time reader and have read more than 50 books for fun. 

I really love audiobooks and own more then 300 of them.  I listen to them almost every day as I take the bus to and from work.

I am 5 foot 8 and weigh 145 pounds. I have next to no muscle tone in any of my body even less in my left arm which is pretty much useless. Thank god I am right handed because I cannot use my left hand for anything except typing and holding onto utensils. I cannot move my left hand to cut food, so I hold the fork in it while I use my right to cut the food then take the fork in my right hand to eat with.

I cannot even move it to print with or catch with or anything. It is so annoying.

When they test my academic skills, it shows that I have grade 2 age 7 writing, grade 4 age 9 spelling, grade 6 age 11 reading and grade 9 age 13 math skills. That was done 20 years ago when I was 17.

I am on clonazepam, divalproex, olanzapine, and abilify. The clonazepam is for my anxiety, the divalproex is my mood stabilizer, the olanzapine is my anti-psychotic, and the abilify is for the behaviour issues and helps with my meltdowns. 

I was never medicated for ADHD. I was for the OCD symptoms and it was a nightmare. For me anti-depressants caused me to get many times worse.

I found turn based computer games to help a lot. Like civilization and games like that. They are educational and fun. 

I always knew that I was different from other kids my age, but I never really thought of myself as having more than just a mild learning disability. So, it was not really that hard or difficult for me, but I think it was for my parents to see how I was treated by the other kids. I had a couple good friends and whenever I lost a friend, I usually found one or more to replace him with. I am still getting used to all of the symptoms and more seem to crop up or get worse every year. 

Man, kids get it good these days. I never had any OT, PT, ST or stuff like it when I was a kid. I never had an aid worker or got any treatments. I guess it helps to get the DX early not like me starting at 17. That is way too late to be of much good. I had to do all the regular classes and courses. I had to fend for myself. Teachers never paid me the siltiest bit of attention. I never got any help from teachers to teach me anything. I had to teach myself how to do everything. I was expected to do everything a regular kid has to do at each stage of the game. The problem is that I never told anyone that I really could've used some help. 

I really hate September and October. September always reminds me of going back to school and that meant a new teacher and new classroom to try to remember. I hatted going back to school. within a week or two I would be fine I just hatted the going back part not the school part. I did not mind school so much as the change in routine. October is thanksgiving up here in Canada plus I have my moms and my grandma's birthdays and Halloween to deal with. It is just too much to deal with in a short period of time that’s all.

Christmas and new years were not much better for me also. I never get any sleep Christmas eve. I think it goes back to when I was 5 and I was determined to catch Santa in the act of putting out the presents. I stayed up all night and caught my parents in the act. that was the end of the illusion of Santa for me.

There are not that many disabled people That I get to see every day. and the average tantrum I see is from a preschooler not getting what he wants from his parents. 

I am a very independent person, so I see a lot more melt downs than my parent’s do. 

I hate speaking in public it gives me a total meltdown every time I have to do it. I am not all that successful yet. 

I think of all the crazy things I asked for Christmas and my birthday. Like a horse, dirt bike, go kart, hover craft, trip to space, a pet t-rex. compared to some Like a new game or book or comic or upgrade to my computer. Or even a dog or cat seems small compared with some of the stuff I thought up for myself.

Most of my dreams come true for me. I am always 

having moments where I feel like I have already done them before and then I realize that I had a dream of doing exactly the same thing. I think that my whole life has already been planned out and I am just going along for the ride. 

I also have major anxiety issues and have a hard time adjusting to any change period. The start of school was very hard on me and I still get upset come September because of the start of the school year 

When I was 12, we moved, and it was really hard on me. I did not say anything to my parents about how hard it was. It took me 3 years to get adjusted to the new house and location. I acted really bad for those 3 years and got into a lot of trouble. I skipped 2 months of school without my parents knowing till one of the teachers bumped into them at the grocery store and asked if I was alright because I had missed the last 2 months of school. 

I also racked up $500 in long distance phone charges in one-month phoning movie studios and threading to sue them for movies that used names that I had thought of using. It was a really bad time in my life, but it did get better.

I wouldn't share with anyone it did not matter who they were. My parents kept having to tell me that I had to learn to share my stuff. I got over it eventually, but it did take a very long time to learn the art of sharing.

I was 17 when I got the DX of Asperger’s syndrome ASD 1. So, for me I would have liked to have known much sooner than that. So that I could have had the proper support in school. I look, act, and seem very much like my blood brother and I only got to see him once 17 years ago. It was really freaky because we never grew up together any, yet we are so much alike. He has the same mannerisms, body language, speech patterns and everything. It makes you wonder how much nurture has to do with it or if it is mostly nature. The genetic code that binds you together is stronger than anything on the planet.

I watch crime TV shows and medical dramas. I play virtual hockey games and watch hockey on TV. I blog about what it was like growing up as me. I read fantasy books and listen to their audio books. I play strategy games on the computer and fiddle with the computer to try and keep it in perfect working order. That is what I do these days to make me happy.

I played the drums, piano, and trombone and got good at each one of them.I have had several girl friends over the years. All this having ASD. So, it is possible to live a semi normal life. Hang in their it does get better. I think the only one that should be called a expert on ASD is someone who has ASD and is able to talk about what it is like to have it. You can ask me anything and I will try to answer it. I cannot answer questions that I have not been asked. 

Whenever I find a post that goes into something that I have knowledge in I comment on it and post the comment on my blog if it is worthwhile. I think everybody should benefit from my experiences

I was 17 when I got my first DX of Asperger’s Syndrome, so my parents never put any limitations on me either. I tried every sport in the book till I found golf and bowling that I am good at. I know lots of people with ASD that live a pretty normal lives on their own and I am living a pretty normal life, so I think anything is possible.

you would think that someone would have noticed 

something was wrong and told my parents about it. 

But nope no one did, and it was just a fluke of my 

birth mom dyeing of a brain tumour and for me to get checked out that I even got the DX of ASD when I did.

I like people to know that I am autistic so that they can see the other side of it. I wear a hoodie that says I wear blue for autism awareness. 

Most people think of autism as being the classic aloof form and don’t realize how varied the disorder is. 

My mom had to become a stay at home mom because every time she tried to drop me off at daycare I would start crying and throwing a tantrum till she stopped trying. The daycare people said after a week that they could not handle me because of the crying and tantrums that I would through. she took me to our pediatrician, and he said because I had come from foster care and was adopted that I was having abandonment issues and that it would not get better any time soon and that she should stay at home with me and be my own day-care provider. so, she did till I was 12 and then she went back to work.

I did do some pre-school, but I just hid under a table and did not partake in anything and would have nothing to do with anyone, so she gave up on that after a couple of months and just kept me at home till I was old enough to start kindergarten.

I think it is a big mistake to get rid of the Asperger’s DX because without it in their most of us will not get a proper DX and will not get the services or support we deserve. 

I would have been DXed as PDD-NOS which is what they were wanting to push on me but for one nero doc that said it was Asperger’s. 

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My Earliest Memories

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The School Years

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Most Asked Questions

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My Medical Issues 

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As Far as I Can Remember

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My Other Issues 

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